I never thought I would define myself by my
disease/disability, but at this point I’m feeling like cancer will forever
define my life. I do not define myself
by my wheelchair use or traumatic brain injury or other disabilities. I am a wife, mother, piano teacher,
Christian, friend, daughter, writer, etc. who happens to use a wheelchair and
have a traumatic brain injury. Now, I
get to add, who happens to have cancer.
At this moment, I am a cancer patient.
Someday I will be a cancer survivor.
But, my life will forever be defined by cancer.
I was struck by that as I attended my eye appointment this week. I had to mark “cancer” on my
health sheet and my daughter had to mark it on her family history. I’ve done this at my other appointments this
week, but those were appointments related to my cancer. This was my eye doctor and I realized at that
moment that I will always be defined as a cancer patient and my children now
have to acknowledge my cancer every time they fill out health forms.
I was hoping getting a plan of action in place would help my
frame of mind. I was wrong. I want nothing more than to forget for at
least a few minutes that I have an alien invader inside my body. That has not happened, nor do I see it
happening any time soon. I’ve been asked several times over the past
few days how I feel. How do I feel? How should I feel? I don’t feel like I have cancer. Physically, I feel no different today than I
did a month ago before all this began. I
have no pain. I have no fever. I have no indication that there is an invader
living inside my body. Surprisingly, my
blood pressure has even remained at or below normal even during all the doctor
appointments I’ve had this week.
Physically, I guess the answer is, “I feel fine.” Emotionally is another story all
together. I feel like I have an invader
living inside my body and I don’t even really know they’re there. But, I will never again feel completely free
from this invader. Even when they cut it
out and do whatever follow up treatments come, I will constantly be wondering
if it is really gone or just doing a great job of hiding out and waiting until
it’s bigger to show itself. The rest of
my life will be defined by cancer.
Don’t be afraid to ask questions or talk to me about my
cancer. I may not want to think about
it, but I always am. Nothing you say
will remind me that I have cancer. That
thought is constantly in my mind. And,
it is not going away. I will not “get
well soon.” This is a lifelong
battle. Hopefully, there will come a day
I will be declared cancer free, but it will not be soon. And, it will never mean I can relax and let
my guard down.
So, I guess the moral of the story is I will have rough days
emotionally for the rest of my life.
Like it or not, once cancer enters your life, you are forever defined by
cancer. And, in case you didn’t
know. CANCER SUCKS!
Thankful thoughts for today:
Rain free track practice
Talking to someone who's "been there"
Glasses ready in one hour
Wonder Woman socks
Raised garden planted
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Cancer sucks!
ReplyDeleteI am so glad you are sharing your thankful thoughts. It is my reminder to be mindfully thankful for those things in my life. And this season, we have some parallel thankful thoughts!
ReplyDelete